Well first of all please all keep praying, it is working, so far so good. We went to the Pain Management Office today. Dr. Feldman, who the last time he saw Becky she was in hospital bed fast and on bed pan unable to get out of bed, with her Oncologist who has written her off saying this was the end. Well he was smiling from ear to ear as we walk in and walked back to the rooms, he didn't say anything just kept shaking my hand, and explained the pump to Becky cause when they explained it to her last she was clear out of her mind on 16.3 Dialated per hour. She is now with the pump on 2.99 Miligrams per Day, that is a bigggg difference. They put this template on the pump the size of a hockey puck under the skin it shows where to insert needle they took out the old Dilated 5cc and put in the new 19cc. and we are to go back on June the 10th unless we need to up the dosage.
Well we got home, walking out of the office by the way, very slowly of course but still walking out, we drove through the city parks looked at the flowers and the geese we have 100,s of them and we had to stop twice well they crossed the road she was smiling at that.
We got home and she got out the pan to heat up some ham, greenbeans, and potatoe stew and ate 2 bowls of it and some fruit fresh strawberries and pineapple and laid on the couch to watch Judge Judy.
I know to anyone else these things would seem small but I know all of you would know what all of these little things mean.
Thanks so much for all the prayers, and keep praying.
Love to you All Dee (Beckys MOM)
Wednesday, April 29, 2009
Saturday, February 28, 2009
Tuesday, February 17, 2009
February 17th
Becky and her mom will be on their way to NIH in the morning for her tests. Becky has had so much pain with these kidney stones. She is finally home and NIH got her scheduled right away to go there. Her CT scan is at 4:15 tomorrow. She will be an inpatient there until at least Sunday.
At least three others from the MPIP are currently at NIH. We make quite a family, all caring for each other! Hoping they all get good reports!
Julie
At least three others from the MPIP are currently at NIH. We make quite a family, all caring for each other! Hoping they all get good reports!
Julie
Sunday, February 8, 2009
Update on Becky
Sorry, it is me again, Julie. Thought you all might want an update. Better from Becky, but I am all you have at the moment!
I continue to check Becky's website daily myself and finally wrote to her mom and got an update. She asked me to post on the MPIP, but thought I would put this one here.
Last Sunday Becky started having some extreme abdominal pain, turned out she has some kidney stones. Those can be so painful. Anyway she was admitted to the hospital last Tuesday and they have changed the stents and zapped the kidney stones. She is currently not having pain in her kidneys but is on an antibiotic because of the stent and this is making her nauseous, so she is still in the hospital at the time being.
She was suppose to go back to NIH two weeks ago for scans, but that coincided with the big snowstorm and Becky didn't feel up to sitting in airports with her reduced immune system. This past week she was in the hospital and couldn't go. NIH is anxious for her to get back for scans to see how things are doing. We are all anxious to hear some good news from Becky!
Julie
I continue to check Becky's website daily myself and finally wrote to her mom and got an update. She asked me to post on the MPIP, but thought I would put this one here.
Last Sunday Becky started having some extreme abdominal pain, turned out she has some kidney stones. Those can be so painful. Anyway she was admitted to the hospital last Tuesday and they have changed the stents and zapped the kidney stones. She is currently not having pain in her kidneys but is on an antibiotic because of the stent and this is making her nauseous, so she is still in the hospital at the time being.
She was suppose to go back to NIH two weeks ago for scans, but that coincided with the big snowstorm and Becky didn't feel up to sitting in airports with her reduced immune system. This past week she was in the hospital and couldn't go. NIH is anxious for her to get back for scans to see how things are doing. We are all anxious to hear some good news from Becky!
Julie
Tuesday, January 6, 2009
At home... resting...
Hello All!
I'm sorry that it has been awhile since I have posted. After much "deliberation" by the Dr.s at the NIH ~ I was able to come home on New Year's Eve!!! I was soooo Happy :) about that. I made it home with relative ease. It was snowing and amazingly beautiful... looking at all of the wonderful Christmas lights decorated on everyone's homes... it truly was a nice welcome home.
I've not been feeling so well... off and on... but that was to be expected. My immune system will take approximately 6 months to fully get back into order.
I have some amazing friends and family ~ I wouldn't have been able to do this without you.
Right now, the number one priority and goal, is to keep eating... and to eat well. I lost alot of muscle weight, which, apparently isn't a good thing. I've finally begun to eat something other than cheerios and jello!!!
I am hoping to put all of this behind me... I have honestly had quit enough hospitals for now. Although, I am supposed to be going back to my onc for a urine culture... this stint... is causing problems... infections, etc. I'm not sure if it is almost time to change it once again or not... something I need to look into.
It's nice to be home though... so, for now... I am going to enjoy the simplicity of this time. I have jacked my furnace up to 75 degree's and have put on additional heaters... it is now very warm and cozy!!!! (just how I like it)
I hope that all is well with everyone.
I will continue to post ~ as long as I am feeling up to it. Today has been the best I've felt in a long while.
I am keeping all who are fighting in my thoughts (especially Knute ~ who is currently at the NIH doing this treatment)
Take Care my friends ~ and Thank you all... so very much ... for your kindness and concern.
Love,
Becky
I'm sorry that it has been awhile since I have posted. After much "deliberation" by the Dr.s at the NIH ~ I was able to come home on New Year's Eve!!! I was soooo Happy :) about that. I made it home with relative ease. It was snowing and amazingly beautiful... looking at all of the wonderful Christmas lights decorated on everyone's homes... it truly was a nice welcome home.
I've not been feeling so well... off and on... but that was to be expected. My immune system will take approximately 6 months to fully get back into order.
I have some amazing friends and family ~ I wouldn't have been able to do this without you.
Right now, the number one priority and goal, is to keep eating... and to eat well. I lost alot of muscle weight, which, apparently isn't a good thing. I've finally begun to eat something other than cheerios and jello!!!
I am hoping to put all of this behind me... I have honestly had quit enough hospitals for now. Although, I am supposed to be going back to my onc for a urine culture... this stint... is causing problems... infections, etc. I'm not sure if it is almost time to change it once again or not... something I need to look into.
It's nice to be home though... so, for now... I am going to enjoy the simplicity of this time. I have jacked my furnace up to 75 degree's and have put on additional heaters... it is now very warm and cozy!!!! (just how I like it)
I hope that all is well with everyone.
I will continue to post ~ as long as I am feeling up to it. Today has been the best I've felt in a long while.
I am keeping all who are fighting in my thoughts (especially Knute ~ who is currently at the NIH doing this treatment)
Take Care my friends ~ and Thank you all... so very much ... for your kindness and concern.
Love,
Becky
Saturday, December 27, 2008
Peace and Love
I know that many of you are still quit busy from the Christmas Season and in preperation for the New Year; however, I wanted to continue with my posts to keep you informed of my progress. I am still at the NIH recieving IV infusions of the antibiotic for my infection. They are bringing in a hyptnotist on Monday to see if there is a possibility to help get me out of here sooner.
I've never been to one ~ so, we shall see what happens. The antibiotics are required to run until Jan. 2 ~ so, it seems as though, I just may be spending the New Year here.
Ok ~ ok ~ I know that I shouldn't be complaining, I truly have had a wonderful opportunity at the gift of life with this treatment. All of your comments, thoughts, prayers, vibes, etc. are ALWAYS more than welcome! Thank YOU!
I know that there are still many of you waiting your opportunity at the gift of life as well. I keep so many in my thoughts and prayers. I have seen alot of heartache since I have been coming to the NIH, but I have also seen alot of miracles...
Dr. Rosenburg even stopped into my room the other day to say "hello" (which, I hear, is something that he does quit infrequently!) I'm a lucky one :)
I'm sorry to say, that there won't be alot of pics posted for awhile. I do so have alot of stored photos from my time and stay here; from a sweet sixteen to a tea party to Christmas Carolers, to Amy and her wonderful prescence and sooooo much more from many, I am blessed and grateful.
Clem, please tell you wife that I absolutely LOVE the blanket! I have used it everyday since I got it in the mail. I have loved and adored all gifts that have been bestowed upon me this holiday season. I have such a wonderful bunch of loving family, co-workers, and friends... even internet family!!! :) I couldn't have done all of this without YOU!!!
Keep the faith ~ Love with all your heart and all will be well. If there is one thing that I have truly learned from all of this... it is... that people truly do hold great compassion and love in there hearts for one another.
I can only hope to return the favor ten fold. I am looking forward to a positive outcome from this treatment... and then... I've given great thought about what to do with my life... and one thing is for sure... in some way, shape, or form, I will find a way to give back in life.
Thanks again, to ALL. Love one another and peace be with you.
I've never been to one ~ so, we shall see what happens. The antibiotics are required to run until Jan. 2 ~ so, it seems as though, I just may be spending the New Year here.
Ok ~ ok ~ I know that I shouldn't be complaining, I truly have had a wonderful opportunity at the gift of life with this treatment. All of your comments, thoughts, prayers, vibes, etc. are ALWAYS more than welcome! Thank YOU!
I know that there are still many of you waiting your opportunity at the gift of life as well. I keep so many in my thoughts and prayers. I have seen alot of heartache since I have been coming to the NIH, but I have also seen alot of miracles...
Dr. Rosenburg even stopped into my room the other day to say "hello" (which, I hear, is something that he does quit infrequently!) I'm a lucky one :)
I'm sorry to say, that there won't be alot of pics posted for awhile. I do so have alot of stored photos from my time and stay here; from a sweet sixteen to a tea party to Christmas Carolers, to Amy and her wonderful prescence and sooooo much more from many, I am blessed and grateful.
Clem, please tell you wife that I absolutely LOVE the blanket! I have used it everyday since I got it in the mail. I have loved and adored all gifts that have been bestowed upon me this holiday season. I have such a wonderful bunch of loving family, co-workers, and friends... even internet family!!! :) I couldn't have done all of this without YOU!!!
Keep the faith ~ Love with all your heart and all will be well. If there is one thing that I have truly learned from all of this... it is... that people truly do hold great compassion and love in there hearts for one another.
I can only hope to return the favor ten fold. I am looking forward to a positive outcome from this treatment... and then... I've given great thought about what to do with my life... and one thing is for sure... in some way, shape, or form, I will find a way to give back in life.
Thanks again, to ALL. Love one another and peace be with you.
Friday, December 26, 2008
My update!
Hello Everyone!
C'est moi, Becky!!!
I hope that everyone had a wonderful Christmas.
Unfortunately, it was a bit of a rough one for me, personally ~ I was extremely ill ~
I was supposed to be heading home today ~ but the docs are keeping me another week, until I can get all of the antibiotics in ~ I am having a very difficult time keeping them down by mouth ~ actually ~ it's been hard to keep much down at all ~ something that I've got to work on here this week.
I will be at the NIH for another week ~ yes, another long week. Although, the rough stuff is over!!! Alleliuh. Wow ~ what a treatment is all I can say. Although, the NIH is the best. They are so wonderful here. I don't remember much of the entire event (which, is fine by me!)
As soon as I can get these med's down and all the antibiotics are in... I'll be heading home. I'm ready. I'm really looking forward to getting well ~ the beach is beginning to call me home.
Unfortunatly, my cell phone does NOT work in here, at all. My room phone number is 301-451-2985. I'm in room 2628 on 3NW for one more week. Hopefully, I will be well enough to answer the phone should I be in the room.
I am supposed to try leaving and getting out a bit... to try and see how it goes on my own before I am released.
OK ~ just wanted to briefly update everyone ~ wish them a wonderful holiday season ~ and say Thank you soooo much for all the goodness that has been endowed upon me this season.
The cells are in me! and, I have a correction ~ 60 billion. The MOST that anyone has ever had grown and put back into them (imagine that) those little critters should be causiing great havock on those melanoma cells!!!! keep wishing me well.
Thank you all.
Love, Becky
C'est moi, Becky!!!
I hope that everyone had a wonderful Christmas.
Unfortunately, it was a bit of a rough one for me, personally ~ I was extremely ill ~
I was supposed to be heading home today ~ but the docs are keeping me another week, until I can get all of the antibiotics in ~ I am having a very difficult time keeping them down by mouth ~ actually ~ it's been hard to keep much down at all ~ something that I've got to work on here this week.
I will be at the NIH for another week ~ yes, another long week. Although, the rough stuff is over!!! Alleliuh. Wow ~ what a treatment is all I can say. Although, the NIH is the best. They are so wonderful here. I don't remember much of the entire event (which, is fine by me!)
As soon as I can get these med's down and all the antibiotics are in... I'll be heading home. I'm ready. I'm really looking forward to getting well ~ the beach is beginning to call me home.
Unfortunatly, my cell phone does NOT work in here, at all. My room phone number is 301-451-2985. I'm in room 2628 on 3NW for one more week. Hopefully, I will be well enough to answer the phone should I be in the room.
I am supposed to try leaving and getting out a bit... to try and see how it goes on my own before I am released.
OK ~ just wanted to briefly update everyone ~ wish them a wonderful holiday season ~ and say Thank you soooo much for all the goodness that has been endowed upon me this season.
The cells are in me! and, I have a correction ~ 60 billion. The MOST that anyone has ever had grown and put back into them (imagine that) those little critters should be causiing great havock on those melanoma cells!!!! keep wishing me well.
Thank you all.
Love, Becky
Tuesday, December 23, 2008
Sunday, December 21, 2008
3 days to go...
It's hard to believe that it is the Monday before Christmas... and all through the house, the stockings were hung, with wishes for all to be well.
I wanted to personally Thank several people... (please excuse me is I miss anyone)
Amy ~ Thank you from the bottom of my heart ~ for your wonderful kindness.. like my mom said "you are a part of the family!" ~ the sweet 16 cookie was a success ~ and I adore the hats and scarves! (whatever you need... whenver you need... we will be here for you too.)
Julie ~ Thank you also ~ for keeping up with my mom and my progress and my blog. You are a doll.
I recieved a wonderful care package from my family and friend at the mpip board/site ~ My picture is posted in my room with all of your names ~ and I am making good use of the warm winter hats!!!!
Kim Deitz ~ Thank you soooo very much for the lovely headbandwrap ! it is something different ! pretty cool, and neat! I've got to get myself some hoop earrings now to wear with it!!! I hope to buy some more after the Holidays!!!!!
Bob, Renee, and Clem ~ once again, I can not Thank you enough for the charitable donations ~ they are a blessing.
Mark Origer ~ I haven't forgotten about you... wow... what an experience. I'll say, it hit me hard ~ like a Mac truck, indeed. yes, indeed; but your care package and donation was so gracious :) Please Thank everyone at your station for me. Everyone loves the Postal Bear ~ he is sitting in my hospital room with all of my letters/cards that have been delievered with a Happy, Holly, Jolly, Santa hat!
To each and everyone of my family members and friends who have been by my side or taken the time to be by my side ~ regardless if I were only sick and sleeping ~ it still means alot to me. As well, to those at home ~ Todd, Thanks for looking after my house (ps... please make sure to keep out all flying bats) ~ inside joke: during my stay in the hospital in October squirells started coming into my home... it was like a wildlife refugee camp... and when you would try to shooo them away... they would fly at you (or so, I was told... pst... personally, I think something fishy might be going on around here!)
Ok ~ enough for one night ~ need to get my rest... long day ahead... ultrasound of the kidneys again... looking for infection of the stint, etc... and hopefully, my counts will be up... I'd like to go find a wig.
Enjoy your day.
ps....Johnny, hey, I tried to leave you a post and send a message... either the chemo has completely whipped me out or I am completely stupid!!! lol... either way, I'm glad to read that you are stable... you are right... stable is good ~ for us. We are still here, living strong, and fighting even stronger!!! I hope that you enjoy your Holiday Season. I am thinking of you :) ...waiting for more of your wonderful stories and pics.
Greg... no, no... I didn't forget you, how could I? never. Tracey either ~ please relay my greetings ~ and Holiday Cheer :)
I wanted to let you know that I am fighting. I am fighting this... with all I have. I hope that you can make the best of your season. Perhaps get in another visit to Canada? Please be sure to let your family know as well, that they are in my thoughts and prayers.
I send my Love,
Becky
~
I wanted to personally Thank several people... (please excuse me is I miss anyone)
Amy ~ Thank you from the bottom of my heart ~ for your wonderful kindness.. like my mom said "you are a part of the family!" ~ the sweet 16 cookie was a success ~ and I adore the hats and scarves! (whatever you need... whenver you need... we will be here for you too.)
Julie ~ Thank you also ~ for keeping up with my mom and my progress and my blog. You are a doll.
I recieved a wonderful care package from my family and friend at the mpip board/site ~ My picture is posted in my room with all of your names ~ and I am making good use of the warm winter hats!!!!
Kim Deitz ~ Thank you soooo very much for the lovely headbandwrap ! it is something different ! pretty cool, and neat! I've got to get myself some hoop earrings now to wear with it!!! I hope to buy some more after the Holidays!!!!!
Bob, Renee, and Clem ~ once again, I can not Thank you enough for the charitable donations ~ they are a blessing.
Mark Origer ~ I haven't forgotten about you... wow... what an experience. I'll say, it hit me hard ~ like a Mac truck, indeed. yes, indeed; but your care package and donation was so gracious :) Please Thank everyone at your station for me. Everyone loves the Postal Bear ~ he is sitting in my hospital room with all of my letters/cards that have been delievered with a Happy, Holly, Jolly, Santa hat!
To each and everyone of my family members and friends who have been by my side or taken the time to be by my side ~ regardless if I were only sick and sleeping ~ it still means alot to me. As well, to those at home ~ Todd, Thanks for looking after my house (ps... please make sure to keep out all flying bats) ~ inside joke: during my stay in the hospital in October squirells started coming into my home... it was like a wildlife refugee camp... and when you would try to shooo them away... they would fly at you (or so, I was told... pst... personally, I think something fishy might be going on around here!)
Ok ~ enough for one night ~ need to get my rest... long day ahead... ultrasound of the kidneys again... looking for infection of the stint, etc... and hopefully, my counts will be up... I'd like to go find a wig.
Enjoy your day.
ps....Johnny, hey, I tried to leave you a post and send a message... either the chemo has completely whipped me out or I am completely stupid!!! lol... either way, I'm glad to read that you are stable... you are right... stable is good ~ for us. We are still here, living strong, and fighting even stronger!!! I hope that you enjoy your Holiday Season. I am thinking of you :) ...waiting for more of your wonderful stories and pics.
Greg... no, no... I didn't forget you, how could I? never. Tracey either ~ please relay my greetings ~ and Holiday Cheer :)
I wanted to let you know that I am fighting. I am fighting this... with all I have. I hope that you can make the best of your season. Perhaps get in another visit to Canada? Please be sure to let your family know as well, that they are in my thoughts and prayers.
I send my Love,
Becky
~
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