Tuesday, January 6, 2009

At home... resting...

Hello All!

I'm sorry that it has been awhile since I have posted. After much "deliberation" by the Dr.s at the NIH ~ I was able to come home on New Year's Eve!!! I was soooo Happy :) about that. I made it home with relative ease. It was snowing and amazingly beautiful... looking at all of the wonderful Christmas lights decorated on everyone's homes... it truly was a nice welcome home.
I've not been feeling so well... off and on... but that was to be expected. My immune system will take approximately 6 months to fully get back into order.
I have some amazing friends and family ~ I wouldn't have been able to do this without you.
Right now, the number one priority and goal, is to keep eating... and to eat well. I lost alot of muscle weight, which, apparently isn't a good thing. I've finally begun to eat something other than cheerios and jello!!!
I am hoping to put all of this behind me... I have honestly had quit enough hospitals for now. Although, I am supposed to be going back to my onc for a urine culture... this stint... is causing problems... infections, etc. I'm not sure if it is almost time to change it once again or not... something I need to look into.
It's nice to be home though... so, for now... I am going to enjoy the simplicity of this time. I have jacked my furnace up to 75 degree's and have put on additional heaters... it is now very warm and cozy!!!! (just how I like it)
I hope that all is well with everyone.
I will continue to post ~ as long as I am feeling up to it. Today has been the best I've felt in a long while.
I am keeping all who are fighting in my thoughts (especially Knute ~ who is currently at the NIH doing this treatment)
Take Care my friends ~ and Thank you all... so very much ... for your kindness and concern.
Love,
Becky