Tuesday, April 29, 2008

FRIENDSHIP


First, and foremost, I would like to say Thank-You to so many very wonderful people; in my life.
You have all been a great blessing. I have been truly touched by everyones generousity; warm kind words, thoughts, and prayers.
The photo is of my crazy daughter and her best friend. My daughter (Jennifer, is on Barbaras back) They have been best friends since Kindergarten. I truly admire their friendship. They have been through so many years of good and bad. They and I look forward to their continued friendship well into life.
And so, with that, I wanted to share a poem: it is dedicated to a wonderful person, that I call, Friend.
the smile
As the tears do weep
my face is asleep.
The beautiful smile
was scourned;
by cancer,
forlorn.
Out of kindness
in hand
my fellow man;
luv is deep,
emotions do creep.
Through heartfelt appreciation
my face awakens.
The beautiful smile,
all the while;
once torn,
is yet to be mourned.
Cancer will not defeat
the Thankful retreat.
Alive is she!
the beautiful smile, and me.
************************************************************************************
yesterday, I received news from the NIH. It's always a rollercoaster ride; as many of you are all too aware. Apparently, surgery is once again being ruled out; its a last resort, for a wide variety of reasons. Systematic approach, is still preferred. The NIH believes that I may be a good candidate for the TRC. Its similiar to the TIL. The only problem lies in the fact that they can not extract my tumour to grow the cells, so, through aphoresis, they will take my white blood cells, try to manipulate them, and grow them. This process will take about 3-4 weeks. Then, it is time... I will be admitted for a good month, or more. Seven days of chemo, to wipe my immune system out, then to put in the cells, and then, to boost it, followed by IL-2. I really had my hopes up, that I wouldn't have to do this treatment. It's not going to be easy, by any means. I have met and spoke with several people who have done the treatment. They are so brave, and strong. I know, that it is the only treatment for melanoma right now, that has a 50/50 chance of working... I know, those are great stats. I'm scared. I'm most definately going to loose all my hair. A bit emotional for me.
It is wonderful, to know, that I have friends, who care so much.
My friend, called me last night, to ask me, if it would be alright to have a dinner/raffle fundraiser for me. I am truly touched, and honoured. I never expected anything or anyone, to do this for me. I am grateful. You are all so very wonderful. It brings tears of happiness. I thank you all.
I will keep you informed. The NIH will call me next week, to let me know, if my tumour cells have the right protein markers that are needed for this treatment. (we know how that goes!!!) In the meantime, I am going to try to get back to work, for a bit. I can't just sit around here, it'll drive me mad!!! lol... all this "wait and see"... works on one!
ps... yes, absolutely, feel free to e-mail me, personally. Summerbead69@yahoo.com

Saturday, April 26, 2008

The Statistic or is that Strategic hunt?


Carver, this one's for you! I always knew that this photo would come in hand someday!!!

Blossoming














So, here I am. In Bethesda, MD. At the NIH. Underneath a beautiful cherry blossom tree. Under all the splenour and beauty. It's breathtaking. I'm in awe. There is so much beauty in Life. It surrounds us. It is seasoned, and brings much delight. Much like, the time in our lives. It's learning how to take advantage of the greatness that surrounds our daily lives. It's learning how to live, and thrive; throughout the seasons of our lives. It's also about, taking the time, to appreciate that life. Hopefully, as you take your journey, this path in life; you too, will learn to stand peacefully, under the blossom of your tree of life!






*************************************************************************************




I now see, more clearly, the beauty in nature and life. I feel so alive! -




And, even though, today isn't the brightest of days, I know, I will survive.




...my tumours are alive, but, that's allright.... so too, am I!

















Tuesday, April 22, 2008

it's just me, myself, and I...

So cool. I took this photo, as the start of a journal log, through my battle with cancer. My inspiration started several months ago, but it wasn't until this evening, after watching crazy sexy cancer, that I decided to truly honour those intentions.
So, here I am... with my lifesavor, my new laptop. Yes, that's me, screen name: Becky... one side looking out, the other side looking away. I guess, you can say, it mirrors my feelings.
I really, had wanted to take a look at myself, with hair... well, what hair, I have... it has thinned out sooooo much since I started the IL-2 treatments. Everyday, I loose several hands of strandful hair. You would never know... but, I do. It's ok. I'm cool with it. I've still got hair. Although, my eyelashes, now they, are becoming completely non-existant! That's cool too.
It's never too late to take a close look at yourself, or, yourself, taking a closer look at you!

Bags Packed...


My bags are packed, and I'm ready to go. Well, as ready as I can be. My flight out of Cleveland to Baltimore Washington leaves bright and early, 7 am. I've got an hours drive time prior to that. I will be getting up around 3:30 to shower, and get ready. My ride, (my step-dad; aka "Bob") likes to get up before the sun shines! :) He has been driving me to Cleveland for about a year now- wow. What a trooper. I will be going alone. My mother is going to watch my daughter, and my aunt is on "stand-by"... dependant on scan results, my mother may come to the NIH in Bethesda. AAAHHH yes, scan results. I've got a full itinerary, as usual. No eating after 11 am. (4 hours prior to those scans) ... so, you know what that means... EAT, EAT, EAT... until then!!! I've got to catch the shuttle to the NIH from BWI; which takes about 40 minutes. Its pleasant, usually quiet. I often nap, but, on occassion, meet someone really nice to chat with. Then, its off to get my blood drawn. After that, 3 o clock scans. UUMMM yummy... can't wait to drink that lovely cocktail concocsion, that they call "barium..." mm something or another. Let's see, will I have bannana or berry? -- then, its off to the scan room... deep breaths...in, out, .... injection... oooohhhh ... I gotta' pee... (gotta' love that feeling!) .... next stop- MRI. yeap, MRI was scheduled this time. I found a small lump in my neck after my first round of IL-2, which was still there after the second round. I haven't really noticed it, since I've been home... I've been trying to keep my fingers from wondering... NO more, self-exams!
Thursday... clinic day... THE DAY. THE DEFINATIVE DAY... I'm such a nervous, anxious wreck. It's quit the big deal... have my tumours responded to this incredibly rough treatment? - have my tumours shrunk? have they stabilized? or... have they grown? ... the scans will be the determinate factor in the next step/phase of my life. It's a rather big deal.
I've once again, packed my Mickey Mouse bag... (my reminder, of youth and fun) ... packed full of pj's... and hospital gear. If the Il-2 kicked mel's butt... I will be re-admitted promptly... put a pic line in... and off we go... cycle 2 of IL-2. I sure hope that my mom comes. It gets so lonely, and difficult, when you are all by yourself. Sometimes, it's unbearable. However, if the tumours have grown, well, ... I guess the TIL is to be discussed. I'm not sure, I'm ready for that... chemo, adjuvant, growth, ... I'm not even sure, what all is involved. Too much, right now, for me to comprehend, and phathom.
I should be getting off to bed, however, I can NEVER truly sleep the night before.

Friday, April 11, 2008

Bridging the Gap



When I originally started this web-site, my aim and goal was to try and help "bridge the gap" between those diagnosed with cancer and those not. I started with a simple poll, to see who would be driven to my site. Something relatively simple, I thought. I can not believe the results. Not one single person from outside the realm of my cancer community came to view my site. I posted this link on other sites, other than the MPIP board. I know, without a doubt that the majority of my readers have come from the cancer community. I am perplexed and baffled. I feel like, I am leading a double life. I have been feeling this way, for quit some time. Why is it, that when someone is diagnosed with cancer, everyone seems to become distant and stray away? Why is there some unwritten rule that we shouldn't be talking about this subject matter in our routine conversations with family and friends? I am completely discouraged. I am upset and hurt. Before I was diagnosed with cancer, I talked to everyone. I donated money to the United Spinal Association, and Pathway for Children's Sponsor's. I did not discriminate. I did not segregate. I listened. I offered encouragement. I didn't treat the Walmart door greater, who happened to be in a wheelchair, with any difference than any other.
I recently ran into an old friend who I hadn't seen for almost ten years. We caught up a bit, summarized the years; and then, I was asked, the inevitable: "how have you been"? Naturally, I answered with honesty. Why shouldn't I? I told her, that I had been diagnosed with cancer two years ago and just finished my treatments and that I wasn't feeling so well. I said it, non-challantly. As, a matter of fact. I wasn't looking for sympathy. I was merely looking for conversation. Needless to say, I hadn't got to ask how she had been. She ended the conversation abruptly. She really didn't know what to say, I imagine. There are, though, those, who engage in conversation when I mention my diagnosis. They are truly sincere, and sensitive; willing to talk and listen. They seem to be the few. The minority.
I know, I can't change the world. I know, I can't change people. I do know, I can try and make a difference.
"Today nearly 10 million people are living with a cancer history"; if this statement is true, where are they? Hiding out, taking polls on the internet, in their taboo corners of life? Seeking to obtain knowledge and power to heel. Yet, human compassion is an important factor in the healing process. Where is the humanity? In this vast land, we have yet, to bridge the gap of life.

Thursday, April 10, 2008

"Live each day, and not merely exist"



It's the start of a new day. Yesterday, is behind me now. I woke up thinking, what a beautiful day. The sun is out, shinning, and spring season is upon us. So, I went outside to take some of my first pictures of the season. My daffodils are in bloom. No matter how hard I tried to get that perfect picture, bright and crisp, alive and full of color; I just couldn't. My camera and eye, wouldn't focus. I had thought about this, much like, my contemplation of deleting yesterday's blog entry; then, I realized, why should I? It is part of life, and at times, it is the "cloud" permeating over our head, that brings upon the brightness and clarity that we so much strive to obtain. I took a look at my pictures of the daffodils, and I noticed, in the background, how the light hit the smallest of buds. What a beautiful sight. Bright yellow, with illuminous light radiating. It stood out. It was not what was in the forground, but, the background. So, I thought, perhaps, this was meant to be. Perhaps it is the "background" of life that shines through our days. I have not been very happy with the "foreground"; of my life, yet, I am happiest when I think and believe in the dream. Joan Anderson states: "start by identifying a dream, a passion, or a spiritual goal" and that "Nothing is worth more than working toward something of value." A dream helps give us something to look forward to. I had lost my way. I had had given in, and subcumed to failure for the day. The dream will always lye. It's what we do, to obtain that dream. So, perhaps, now, is not the right time, for my dream to come true. But, the light of that dream will always shine through! I know that there will be better days. So, too, to say to many of you; look beyond the day. See your hope and ray of light. It will always hold true.

Wednesday, April 9, 2008

one of those days...

Hello All! - I'm a bit tired these days. I haven't been getting much sleep. I've got so many things to contemplate right now, in my life. The cancer diagnosis and treatments have really been affecting my thoughts, alot. I have been contemplating moving to Florida. I live in Ohio. I'm unemployed at the moment, and looks like, this may last ALOT longer than I had anticipated. I am trying to start my own business, (as you may have noticed) to help support me, while I am taking treatments. I'm not so sure, it's working so well. I know, that I just feel like, I need to get out of this town. Yes, my immediate family, and circle of friends live here. Everyone thinks that I would be completely crazy to do this right now, with everything that is going on. My teenage daughter doesn't even want to move with me, she prefers Ohio and wants to move in with her dad. I also have to contemplate whether or not, I want to do the TIL treatments at the NIH if the IL-2 treatments aren't working. To be Frankly honest, I'm not ready. I'm not even sure, I'm ready to continue on with the IL-2 treatments... what length of duration are we talking here? I want to go back to work, and get my life back. I want to be "back to normal". Just for a bit. The cancer will be there. It has been there. Couldn't I just take a "break"... and then return once my finances and emotional state were in place? - yes, I am having one of those moments. Is anyone else interested in moving to Florida? - I'd LOVE a roomate! It's too cold here for me!!! I love the warmth of the sunshine :) - any words of advice/ or opinions to help me out?

Sunday, April 6, 2008

Taking time to appreciate the simplier things in life...

Sunday Morning-

What a beautiful way to start the day! An act of nature at my front doorstep. So close, yet, so far away.

-as stated by the Tao: "seek the joy in your activities rather than focusing on ego's agenda"

I found it amazing that this squirrel came so close to me. He was scared, yet willing to take bread from my hand; with pre-caution, of course. We were both timid, yet, we both sensed pure satisfication from the act of giving and taking.
To me, these are the things that count the most. True acts of compassion.

Lao-Tzu advises us to be careful about amassing greath wealth and storing it away. It contributes to a life spent keeping our fortune safe and insured, while at the same time always feeling the need to pursue more. He counsels us to be satisfied fostering living with humility.

Living Life, is an empowerment that WE have been given.

Friday, April 4, 2008

TOP 10 CANCER CENTERS

MEMORIAL SLOAN-KETTERING CANCER CENTER, NY, NY

UNIVERSITY OF TEXAS M.D. ANDERSON CANCER CENTER, HOUSTON, TEXAS

JOHN HOPKINS HOSPITAL, BALTIMORE, MD

MAYO CLINIC, ROCHESTER, MN

DANA FARBER CANCER INSTITUTE, BOSTON MASS

DUKE UNIVERSITY HOSPITAL, STANFORD, CA

UNIVERSITY OF WASHINGTON MEDICAL CENTER, SEATTLE, WASH

UNIVERSITY OF CHICAGO HOSPITALS, CHICAGO, IL

UCLA MEDICAL CENTER, LOS ANGELEAS, CAL

ROSWELL PARK CANCER INSTITUE, BUFFALLO, NY

Hallmark Occasions Photography


Go Bananna's!
Eating a healthy diet is extremely important before, during, and after cancer treatments. 1 Bannanna provides 100 calories, potassium, and magnesium. You should eat at least 5 servings of fruits/vegetables daily.
Try mixing your banana in yogurt or oatmeal, or making a milkshake.
Another great idea: smash up some banana's and put them in your pancake mix!!! (or, you can just put the banana on top of your pancakes! Don't forget to add those blueberries! They are high in antioxidants.
During treatments, it is extremely difficult to tolerate many tastes and smells. Start small. Don't try to overdo it. Eat what you can, when you can, and whatever you do, don't forget to drink, drink, drink, plenty of water!

Life is crazy

Life is crazy.
There it is. Plain and simple. No middle of the road. No boundaries. No tolls. No tokens; to call home.
We live and we die. We sit and we cry. We spry. We then ask why.

As confused states of mind may be, conflictions and contradictory; the nature of our hearts and soul take upon a different stroll. There is no middle of the road. Our minds, they stir; all the while, our hearts are in a flurr. Our perception of life becomes a blurr. Our reality is amidst defeat, and our vanity is incomplete.

Nothing seems real anymore. The surrealism which surrounds has entangled me in a web. A massive web of deceipt and inevitable destruction. My demise is foretold and will soon be forgotten. In the land of the oblique, where confusion sets stray; reality is no longer at play.

We live in a minut corner. A pebblestone, left on the eartlhy ground.
All wrapped in silence, all wrapped in stone.
It's enogh, to just want to let go.
You took my heart and ripped it apart. You tetter and toy, with every explicit convoy.
And I, I allow you to flirt with my emotions. I permit and do not cease. The overbearing break, that my heart has in tow. Two hearts, that once flow.
For, it is your nature to deceive.
I just need to grieve.
I want to love. I want to be loved.
I want to live. I want to live and share that love.
I want to give; of my heart and soul.
I want to feel, all hearts desires
explicitly so
forever more

in the land of reality, where confusion sets in; surreal fantasy takes plight, and boughts from within
my perception of life, is forever sealed
in a fate of feats
left for aphrodity
almighty leaps
and bounds with faith
the hope and glory
are yet, my greatest escape
desctruction is inevitable
it's a dangling measure
of life's fleet.
it's seriously time to think of my alternative escape
from a world lost in vain.
from the savage at hand
and heart the same
I honestly thought I was so strong and brave
I've stayed headstrong amongst the waves

Thursday, April 3, 2008

Living the Wisdom of the Tao


Practice nonaction
Work without doing
Taste the tasteless.
Magnify the small, increase the few.
Reward bitterness with care.
See simplicity in the complicated.
Achieve greatness in little things.

Take on difficulties while they are still easy;
do great things while they are still small.
The sage does not attempt anything very big,
and thus achieves greatness.

If you agree too easily, you will be little trusted;
because the sage always confronts difficulties,
he never experiences them.

The wisdom of the Tao


Greatness can be achieved by the simpliest of gestures; a smile, a handshake, a kind word, a thought, a gift, a grattitude, an understanding, or simply; the act of being. Being a true friend or companion. Your greatest attributes will shine through in the smallest achievements. You must know, that YOU have the power and will to affect not only others, but yourself as well. Find within yourself, that which YOU seek to obtain; and use your best qualitites to help guide you through your path in life.